Skip to main content

FAIR Ethical Patient Data Records Deployment in Health Facilities in Africa

20 April 2022, 16:00 – 18:00 CET (Hybrid) EM109 in the New Gorlaeus building – Einsteinweg 55, 2333 CC Leiden, Netherlands, and registration.

Organised by VODAN-Africa, Leiden University Medical Center, Kampala International University (KIU), Network Globalisation, Accessibility, Innovation and Care (GAIC), Stanford University Center for Expanded Data Annotation and Retrieval (CEDAR), San Diego SuperComputing Center (SDSC)
Moderators: Prof. Dr Mirjam van Reisen, Prof FAIR Data Science, LUMC and Christine Kirkpatrick, SDSC

16:15 Welcome by Prof. Dr. Mpezamihigo, Kampala International University, Chair of the Virus Outbreak Data Network (VODAN—Africa) and Prof Dr Francisca Oladipo, Executive
Coordinator of VODAN-Africa

16:20 Opening by Hon. President Fortune Charumbira, President of the Pan African Parliament to the African Union

16:25 Introduction of the Ethical FAIR Data Pipeline by Ruduan Plug and Dr. Katy Wolstencroft, Leiden Institute for Advanced Computer Science (LIACS)

16:35 Video demonstration of VODAN-Africa by Mariam Basajja, Aliya Aktau, Putu Hadi Purnama Jati, Getu Tadelle, Oluwole Olumuyiwa Afolabi, Ezra Mwesigwa

16:50 Localising and FAIRification of CEDAR as an ethical data pipeline by Samson Yohannes, Mekelle University and Prof Dr Mark Musen, Stanford University

17:00 Health Data Interoperability in Science by Margreet Bloemers, ZonMw, Erik Schultes, Health RI and Aliya Aktau, LUMC Data Steward FAIR Scientific Data Management

17:10 Security, Reliability and Trust of Digital Health Patient Data by Prof. Dr Tegawendé Bissyandé, University of Luxemburg and Burkina Fasso

17:20 Interdisciplinary collaboration of Innovative Science and Business by Prof. Dr Simcha Jong, Paris Polytech, Institut of Interdisciplinarity and Innovation

17:30 Overcoming Challenges with FAIR Ethical Health Data – Closing Address by Dr Hagos Bureau of Health, Ethiopia and Dr Amanuel, Chief Medical Officer Ayder Hospital, Ethiopia

17:45 Announcement of Special Issue 4 of Data Intelligence, by Dr Fenghong Liu, Academy of Sciences, China

17:50 Close and Thank You: The next generation of GO FAIR, by Prof. Dr Barend Mons, Chair of the Go FAIR Foundation

18:00 Closure by Christine Kirkpatrick, SDSC and Prof. Dr Mirjam van Reisen, Prof FAIR Data Science, LUMC